So wait... there's a cure?
Hello internet, it's 2018! I can't believe I remembered my password. Here I am, some 7 years later. I'm 29 and living in New Orleans and am a Montessori teacher. I teach Montessori, ages 6-9, grades 1st through 3rd. I also still have PKD- and technically I have Polycystic Liver Disease as well, on account of having so many cysts on my liver. So it's 2018 and, this June, they released a treatment for PKD called JYNARQUE (or tolvaptan). It's FDA approved which is amazing, and it's coming to me at a doctor's appointment near me on Tuesday. I have to get an Ultrasound on Monday and do some blood work and then I guess it's the big day the next day. This is all coming at the beginning of the school year, as my kids come back on Wednesday. It's so crazy to me that you can google PKD treatment and there is an actual website just talking about it: https://www.jynarquehcp.com/clinical-trial-efficacy?utm_source=Google&utm_medium=cpc&utm_campaign=A